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'It's distressing' - Parkinson's patient slams 'unacceptable' drug shortage

Gary Boyle has had Parkinson's for the past 14 years
Jack Quann
Jack Quann

16.04 11 Jan 2023


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'It's distressing' - Parkinson...

'It's distressing' - Parkinson's patient slams 'unacceptable' drug shortage

Jack Quann
Jack Quann

16.04 11 Jan 2023


Share this article


A man living with Parkinson's disease has said the current drug shortage means he can't control his arms and legs.

Gary Boyle has had Parkinson's for the past 14 years.

Earlier this week, it emerged over 200 medicines are now unavailable to Irish patients  - including 11 deemed critical by the World Health Organisation (WHO).

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Gary told Lunchtime Live respiratory drugs are taking priority.

"What we've found when we've gone - we as in people living with long-term conditions such as Parkinson's - have gone to get our prescriptions filled on a monthly basis, and we're being told some of the drug aren't in stock anymore; they're not being manufactured or they're not being located," he said.

Gary explained this is because of "an issue with this respiratory problem and we need to sort that out first."

"I just find that unacceptable because we are people who go in every month, we meet our pharmacist every month, we're going to be back next month because strangely enough there is still no cure for Parkinson's".

'I'm looking at manufacturers'

He said his blame is directed towards the manufacturers.

"I'm not blaming the pharmacist here at all", he said.

"I'm looking at the manufacturers and I'm saying, 'How can you have a situation where people who are continuously refreshing prescriptions; how can they be in the category of, 'We haven't got enough drugs manufactured.'"

"We see our pharmacist about 12 times a year, that's about 11-times more often than we see our consultant.

"Everything should be ready and it should be a no-brainer to just fill the prescription and move on."

'Disconcerting and upsetting'

Gary said one of the medications in short supply helps to control his muscles.

"One of the drugs in particular that they were short on was a thing called Symmetrel [which] helps people, particularly with Parkinson's, to control their movements," he said.

"It's called dyskinesia when you can't control your arms or your legs, or other parts of your body, from jerking or moving.

"If you could see me now, I'm sitting here on the couch and my arms and my legs are trying to move, and I'm trying to stop them.

Composite image shows a doctor with bottle of pills, and shelves with prescription drugs. Composite image shows a doctor with bottle of pills, and shelves with prescription drugs. Picture by: Oleg Elkov/Clynt Garnham Medical/Alamy Stock Photo

"I'm just in a situation where I can move around but I can't sit still.

"It's disconcerting it's also upsetting; it's also distressing.

"I know it'll go when the drugs come back, but I'd rather not wait another month or six weeks and go through this every day," he added.

Gary has previously voiced concerns over the lack of dedicated specialist nurses in Ireland.

Main image: Gary Boyle. Picture: Supplied

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Drug Manufacturers Dyskinesia Gary Boyle Lunchtime Live Parkinson's Parkinson's Disease Pharmacists Symmetrel

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