Advertisement

Plea for Cystic Fibrosis drug

Gráinne Ui Luing is a mother of two girls, Caoimhe aged 8, and Fiadh aged 6. Both of her daughters have Cystic Fibrosis, meaning they are constantly in need of antibiotics, physiotherapy, nebulisers etc. Gráinne is now in a dispute with the HSE and the...

Share this article

12.03 22 Jul 2022


Plea for Cystic Fibrosis drug


Listen to this episode


Share this article

12.03 22 Jul 2022


Gráinne Ui Luing is a mother of two girls, Caoimhe aged 8, and Fiadh aged 6. Both of her daughters have Cystic Fibrosis, meaning they are constantly in need of antibiotics, physiotherapy, nebulisers etc. Gráinne is now in a dispute with the HSE and the drugs company Vertex which makes the life-changing drug called Kaftrio. Her daughters have been denied this drug as the age group has been excluded from the pharmaceutical deal. This leaves 35 children in Ireland with this condition who have no way of obtaining life-changing medication.

Gráinne joined Andrea on the show to tell her story.


Read more about

Lunchtime Live Highlights

Related Episodes

Donald Trump Tries to Cancel W...

00:24:04

Donald Trump Tries to Cancel World AIDS Day

Newstalk Daily

00:24:04


In conversation with Jarlath R...

00:09:20

In conversation with Jarlath Regan

The Anton Savage Show

00:09:20


What do the figures tell us ab...

00:16:53

What do the figures tell us about the issue of violence against women in Ireland?

The Anton Savage Show

00:16:53


Andy Webb author of 'Dianarama...

00:18:29

Andy Webb author of 'Dianarama: The Betrayal of Princess Diana'

The Anton Savage Show

00:18:29